Support Groups

Various groups listed on the website.

Evanston area

Resources, Advocacy, Information, Services, and Support

A statewide coalition of parents and professionals ensuring that children identified as deaf or hard of hearing and their families receive the necessary resources, advocacy, information, services and unbiased support.

Phone: 312.523.6400 v/tty 

Outside of Chicago area: 866.733.8729 v/tty

Lake County

The Chicagoland Buddy Walk is run by parents and families of individuals with Down syndrome. Once a year we have a 1-mile walk to support local individuals and groups involved with making a better life in the Down syndrome world. Not only do we have a beautiful walk, we also have many other family activities to enjoy throughout the day. Please check the Walk Schedule for a list of this year's events.

Parent Groups coordinated by Parent Liaisons, Cara Long and Sharon Pike call: 630-620-4433.  

Has been an indispensable resource for people and families, including Veterans, challenged by disability for nearly 100 years. Through a network of 73 locations across the country, Easterseals provides a wide range of services including autism services, daycare, therapy, accessibility services, respite, camps and recreation, and more.

An Illinois not-for-profit organization serving 43 counties, the foundation offers counseling, advocacy and educational services to people with epilepsy, their families, and the communities in which they live. Services include information about epilepsy, training and education, case management, programs for children and adults, support groups, legal help, and much more.

Works to advance the human and civil rights of people with disabilities in Illinois. EFE provides publications, events and disability-rights trainings to help people with disabilities and their families become better advocates for their rights.

A McHenry County, Illinois, not-for-profit all volunteer support organization, maximizing the potential of each individual person with Down Syndrome and improving the quality of their lives by sharing ideas, exploring new concepts, and celebrating successes together. FINDS provides Bi-Monthly Newsletters, Social Events, Educational Services, and Family Support.

A program of the ARC of Illinois, the FSN works to unify individuals with disabilities and their families to advocate for funding, services and community resources that strengthen and support the individual and the family directly by responding to their individual needs and empowering them to live in their own homes and seeks to ensure the continuation of all individual supports throughout the life span of the individual.

Works to change the way the world views Down syndrome through national campaigns, educational programs, and by empowering individuals with Down syndrome, their families and the community. Free therapeutic and educational programming for individuals with Down syndrome and their families. Local locations.

Local chapters listed on website.

Visit the website for a listing of local meeting groups.

Indian Prairie Special Needs PTA (IPSN) serves all schools located in District 204.

We are committed to partnering with the district to create a more inclusive educational experience for all children who require a special education plan.

Membership is open to EVERYONE!

Provides trusted, innovative and individualized care and support for families of all backgrounds across Chicagoland. Services include therapy for children and adults; support for people with disabilities and their families; respite care; special education; general counseling, inclusive summer camps for children with disabilities, support for families adopting children, and more.

MOCHA (Mothers of Children Having Allergies) is a group of parents sharing information and supporting each other. The 700+ Chicagoland members of MOCHA know how frightening it can be to learn that your child has been diagnosed with severe, often life-threatening allergies.

Serving Chicago and surrounding suburbs

Contact: Susan Hans, Parent Mentor or call 847-831-5100 x 2228

Contact: Teri Queen

Contact: Monet Carlos, Early Childhood Social Worker at 708-450-5709

Contact: Leslie Lindsey

The Parent Association for Student Services in District 39 is a parent organization committed to supporting parents of children with disabilities.

Mission Statement PASS39 members will facilitate and promote communication and teamwork between parents of children who receive support and services in District 39 schools and the district staff.

Goals

Contact Kellee K. Write Poca Request in the subject line.

ADHD/LD parent support group.
Contact: Connie Parr at 630-801-2556

Welcome to the Rett Syndrome Association of Illinois. We are dedicated to developing awareness and understanding of, and furthering the advancement of research for Rett Syndrome. Rett Syndrome Association of Illinois (RSAI) serves as a support system, and provides resources for families and friends.

Meetings are held the 1st Tuesday of every month, except for the months of January and July.
7:30 pm - 9:00 pm

Schaumburg Township Building
1 Illinois Blvd
Hoffman Estates, IL 60169

We are a local support group that disseminates information to you and our neighbors. We all remember what it was like when you first hear the diagnosis. You are not alone in this. We are here to help and support you. Please email us at schaumburgautism@hotmail.com with any questions.

Call 847-884-1560

Contact: Priscilla Cuba, Parent Mentor at 847-548-2577 x 36

Contact: Kathy Slattery

SERG = Special Education Resource Group
SERG is committed to helping all children with special needs reach their full potential.
SERG is a group of parents and educators that provides programs, resources and networking opportunities to support families of children with special needs.
SERG is organized and funded by the District 205 schools' PTAs.

MISSION
To support parents of children with special needs from ages 3 to 21 by...

S.I.B.S. champions siblings of people with disabilities in Illinois, through Sibshops, sibling support groups, and relevant resources to enhance the quality of life for siblings and families alike.

Contact: Candice Hadley or 630-554-8989

Welcome Parents to SPARK! (Special Education Parents Accessing Resources and Knowledge) SPARK meetings are designed to give parents information to help them in their current and future steps of the journey of parenting children with unique needs. As parents, we guide and make decisions for our children and their development. The task can be overwhelming and we want nothing more than to be as informed as we can be when we set the course we believe our child should take.

North-west suburban group

Contact: Cindy Guererro

Contact: Wendi Serna or 847-852-2204

Contact STAR NET Region II Family Resource Specialist, Gina Musielski, for information on local area support groups at 224/ 366-8571 or gmusielski@cntrmail.org

Contact: Holly Olmsted-Hickey

Started in the Chicago area over 35 years ago, the organization prides itself on being run and organized entirely by volunteers - mostly parents and family members. Reaching far beyond the metro Chicago area, UPS for DownS provides trainings, education, information and community opportunities in order to create communities that are diverse, welcoming and inclusive.

Contact: Susan Hersman 847-263-2319

Contact: Susan Hersman 847-263-2319

Health and Disability support groups-Eagles Nest Parents group.